Menta/physical Problem That Cannot Be Diagnosed

[kyle barnett]

HI, I thought I would like to share a condition I have with you guys, see what you guys think, and how you guys would deal or respond to a situation like this or similar in your life. For a few years now gradually starting and growing overtime, my lower body from lower stomach to lower legs would go through episodes of numbness,lasted for 30 seconds to a minute then the numbness mysteriously disappears and my back becomes fine until it occurs again.It started around 2014.I had no idea what it was and never really bothered with it as it didn't affect the movement in my legs until around 2015 to 2016. It gradually grew worse. It started to occur only ever in my sleep once or twice. But as time went on, it began happening during the day. I will not explain the whole details but I will explain when it became a problem, a very very big problem, during this year. At the start of the year, I had appointments with doctors and physio's because me and my family believed I had a pinched nerve or herniated disc. Or anything physically wrong inside my back {As this was where it radiated from}. Doctors and physio's were confused by it. And I was referred to many different people and appointments. Which all had absolutely no clue what was going on or what it could be. Sometimes I would fall to the ground onto the floor from it.

 

Now here is where it became a massive problem. You see,it got to a point where the numbness episode would occur longer around 1 and a half minutes and cause full paralysis in my lower bodies without anything triggering it. This would occur 4 to 9 times a day every single day. Everyday I would paralyse and collapse on the floor. I've had a large amount of injuries such smashing my head through a glass door, falling on concrete, almost drowning at public pools and breaking family items. It was hell. Nobody knew what it was yet it was far more severe of a problem than seizures. It has ruined many areas of my life such as me having no work experience and unable to work, leave the house often, drive, swim, walk alone, stand near objects, or get good sleep. I couldnt even approach woman, as I have tried and collapsed right infront of them with them immediatly freaking out. I have never been able to have any relationship experience. Iv'e never dated a girl properly or come close to intimacy and was very desperate. So as you could see, I was very emotionally distraught. I had and still have (Only a little bit now) of emotional scars from this. I have been to the hospital for 6 days, had an mri on back and brain, blood test, diagnoses for other treatments and been visited by specialists and nobody could even give me an explanation. The only explanation I had was somatoform disorder where ones anxiety disorder or nuerosis causes the body to manifest an illusory physical condition. I did have anxiety and depression from this issue. But after working very hard on myself and transcending all my emotional problems which I have now. It did not affect my back. I noticed also my anxiety moments and my episodes did not correlate at all with eachother and did not trigger them. So I believe this is ruled out. However there is a chance it played a role in making it worse, yet the problem is still here but now my issues are all resolved immensely. Now I have been on medication rhitilan and it may of contributed to the problem, but even after weening myself off the medication. it did not solve the problem. I cannot go into all the details of diagnoses that have all been ruled out.

 

But to get to the point of the story. I wanted to just share this with you guys and see what you think, how you would of coped when nobody could give you answers on what you could do or not do. And feel completely helpless. Or if anybody has had a serious issue they would like to share and how they cope or coped with it. What would you guys do or feel in my position? and what do you think? 

 

I am currently still suffering from this problem, but it somehow has been reduced with the episodes, and I have started a new with my life, finding work, learning to drive (Hopefully its all better once I am on the road). Also, I may sound like a victim, but in 2016 I have grown a long way with controlling my emotions and my whole perception of life. I was still able to be happy and grounded (Despite a few meltdowns, and depressing and overly anxious moments here and there). Thanks for anyone reading this and I hope my story may assist someone in anyway or associate with this problem somehow.

[Elisabeth]

There was a ted talk mentioning a similar disease (although mostly about managing depression), I wonder if it can be of inspiration for you...

[Lynnel]

Hope this helps

[kyle barnett]

Thank you