Charlotte

@ZenAlex absolutely yeah, mine appeared out of no where. https://www.mastcellaction.org/diagnosing-mcas I found this online with regards to MCAS diagnosis. If you want, and it's a harmless approach, you could try the medicine Alevia, which is brand name Fexofenadine hydrochloride an anti histamine available at all major supermarkets. That is 1 option. https://www.tesco.com/groceries/en-GB/products/310650539 Not all long covid patience do get MCAS activation but many do, many I have met in person. You could also (which I use) try Hyperbaric oxygen chamber therapy, completely harmless, see if you could find this local to you? See if your symptoms improve at all? Have you been to the GP? Also I HIGHLY recommend reading a book called the Long COVID handbook (Gez Medinger & Professor Danny Altmann), that could potentially answer so many of your questions and put you out of your misery. ((DO NOT TAKE IF - You are allergic to fexofenadine or any of the other ingredients in this medicine WARNINGS - Talk to your doctor or pharmacist before taking Allevia if: You have problems with your liver You have problems with your kidneys You have or ever had heart disease You are elderly You are pregnant or breast-feeding - Do not exceed the stated dose - If symptoms persist consult your doctor Keep out of the sight and reach of children. Allevia is unlikely to affect your ability to drive or operate machinery. However, you should check that these tablets do not make you feel sleepy or dizzy before driving or operating machinery.))

Mine begun with long covid, as I've noticed with others. Some LC patients have lost their hearing altogether ☹️ On a scale of 1-10 mine fluctuates between 2-3.

@ZenAlex As part of my long covid investigations my adrenaline responses where measured and results where fine. Other long covid patience are also reporting hair loss. As have I. I have lost been diagnosed with Postural Hypotension (low blood pressure) and am now on sodium chloride tablets alongside compression stockings. And MCAS is also a typical symptom of LC, not for everyone though.

@undeather I had gout at 23 from eating too much fish. Plus OP isn't physically active right now (I presume)

@ZenAlex be mindful you don't give yourself gout "I'm currently eating Salmon 2-3 times a week, Tuna 1x per week, and something like..." Regarding long covid: Tell your doc you want a referral to the long covid clinic.

@ZenAlex a lot of people with chronic fatigue syndrome and fibromyalgia were dismissed by their doctors for it being 'all in their head'. Many doctors have received long covid training around this issue. Can you see another doctor? Exercising - Yes, I still do. I can't work out really. At the beginning I couldn't even walk 5minutes (everyone is different, some begun worse than others). Now, my daily step count is approximately 7K which is not a lot for the entire day. Yes I am also experiencing the depression, anxiety and lightheadedness. My blood pressure, from out of no where is for whatever reason on the low side. But the lightheadedness can also be PEM (https://www.cdc.gov/me-cfs/healthcare-providers/clinical-care-patients-mecfs/treating-most-disruptive-symptoms.html#anchor_1528128659388) of which I do experience A LOT. PEM is fundamentally the exercise intolerance. A recent study done in long covid patience demonstrates what happens when PEM occurs physiologically: (https://www.news-medical.net/news/20240108/Long-COVIDs-hidden-toll-How-does-post-exertional-malaise-affect-skeletal-muscles.aspx) I can assure you it is real and this isn't in your head. Join the long covid UK facebook groups and/or feel free to DM me.

https://www.nhs.uk/conditions/covid-19/long-term-effects-of-covid-19-long-covid/ I also developed intermittent tinnitus (many have) and as you mentioned, I too didn't have any solid feaces for months. Only now, after a year am I starting to see some digestive issues settle. I also developed severe depression and anxiety. If you don't have long covid I will eat my own slippers.

@ZenAlex the tests only work in the acute phase and even then they have a huge margin of error. You can have COVID and be asymptomatic. Long COVID is not an acute COVID infection. Just food for thought as all your symptoms where pointing to it as you suddenly developed exercise intolerance.

@Zeroguy when did you quit? How long has it been? Did they (panic attacks) come on immediately or progressively? Have you experienced these before?

@Someone here so grateful you posted this. Thank you so much 🙏🏻 really needed it ❤️

@ZenAlex iron deficiency appears to also be prevalent in long covid patience. Sorry dude, was going through the sub topic and saw this from you. Not stalking you 😄

@Thomas_VH https://www.tamethebeast.org/#tame-the-beast

@ZenAlex I would put money on it veganism has nothing to do with it. It sounds like long covid, all the symptoms you mention are identical.

?? Nothing came up

@Princess Arabia I mean yeah it's funny but the person also has a genuine issue, in which they have been vulnerable enough to post on a public forum, so I suppose I shouldn't laugh 🤐

The time between a COVID-19 initial infection and neuropathic pain development ranged from 1 month to 15 months for long COVID patients [23,28]. Upon discharge, half of the long COVID patients went on to report new-onset pain 4 weeks later [28].20 Feb 2023 https://www.ncbi.nlm.nih.gov › pmc COVID-19-Related Neuropathic Pain: A Systematic Review ... - NCBI Apologies I can't upload screenshot.

@guitarguy251 you still dealing with Long COVID?

😭😂😭😂

@Staples I have had great results with depression symptoms with microdosing 🍄 I have used antidepressants in the past and I dislikes the numbness I felt. I must admit I have a bias towards antidepressants so maybe I am not the person to ask. However.... I personally think 🍄 are not great for treating anxiety. I am wondering if you could focus on one issue instead of both depression and anxiety, and treat one instead of both, maybe one is feeding the other. How are you getting on now? Did you come to a conclusion? May I ask you to reflect on what you feel may be the cause to the negative feelings you're experiencing? Has this been a lifelong problem or is it more temporary? 🙏🏻♥️

@Someone here 🙏🏻♥️

😅

Apologies if I echo other recommendations buuuuuut you could try: Regular exercise YouTube summer day sounds (birds waterfall etc) with eyes such (using imagination to imagine yourself to a beautiful warm place) Travelling to a hotter climate if possible Keep taking Vit d3 Not tried it myself but the light therapy Going to a garden centre to the indoor house plant section as it's usually very green and warm (replicates summer vibes) Feed the local wildlife (purpose) Give yourself a lovely cosy indoor space with lots of soft and warm vibes. Paired with a nice hot choc etc. (P.s I am also struggling with this as I live in the northern part of the UK)b⛈️🌧️☔ ☺️☀️

Interesting as I was just looking at this exact study yesterday as it was posted on the UK NHS health app

@Carl-Richard that's great news! Glad to hear it shifted by itself 😊 Yes a year, amongst other neurological symptoms also such as slurring words, memory issues, can't find words, it has and continues to be extremely challenging. Had to suspend my uni studies for now 🙁 Anyway, really glad to hear it's cleared up for ya 😊😊

@Carl-Richard how are you now? There is some evidence for creatine. Have you tried ? 5mg daily. I've had long COVID coming up to 12months. Still dealing with 25+ symptoms of which is huge decline in cognitive functioning including brain 🧠 fog 🌫️