Vynce

@Leo Gura Do you never get grossed out by the thought that some imaginary day, you will be in the perspective of a mormon fake-prophet sticking his child molesting dick into his 14 year old follower girls? I have a hard time not cringing out when I imagine that I will be the one doing this, by the laws of infinity and unity.

Wow, well thanks for this. I will go through everything here I may missed. Practically all of it makes sense from my experience and perspective so far. Next in line is LDN and magnesium to test their value for my situation.

No, thats a great idea. I do scour forums, podcasts, blogs, news, articles and conferences for that. However: spontaneous cure for CFS seems to be 1-5% in adults in the first 3-4 years of symptoms - practially 0% after that. And there is not one single curative approach to this illness so far. Not via medication or psychosomatic approaches. Nothing. There is a lot you can do to not make it worse and stable the situation. But resolving it? Nothing viable I could find. I pay anyone on this forum 1000$ for his/her idea that actually makes my fatigue go away, without it coming back.

@integral Yeah, AI isn't to keen on that idea. Also these medications have been studied for decades, so even rare side-effects are known. Maybe they super-charged it in a way. But super-charged what? My cells decision to just work at 5% capacity, permanently? Its just so weird that my body would want to do that, without any infection or serious immediate trauma.

Robots. Robots is what is gonna save our horny balls. Its Robots. If women can have dark fantasy, we can have Robots.

And yeah, No infection, for many months before the CFS started. And even now, all infection bio-markers are silent. Auto-immune is what I largely expect to be the cause as well. But with no good test or screening to see what exactly is off. Maybe also just neurological. Or both.

Already checked out Lyme. Medications are interesting because there were multiple strong agents on my nervous system for months. After a heavy car crash in 2023 and subsequent poly trauma, I did take different opiods (general pain) and pregabalin (nerve pain) for almost 2 years. The CFS did start when I was in the final withdrawal phase of all that. So my guess was I was just fatigued from that. I also startet a treatment with Ritalin in that time period, which I also suspect to have stressed my nervous system to a good extend. If I was just listening on my gut, I would say it was the Pregabalin withdrawal or the Ritalin that caused my nervous system to fall into CFS. Very unscientific though. Could be something else all along.

I'm using the most biodigradable, bio, hippie detergent that I could find. (this https://uk.ecover.com/products/laundry/concentrated-bio-laundry-liquid/ ) - And use and little of it as possible. Nothing else in laundry. Also I stopped perfumes 8 years ago. CFS symptoms are present since one year almost, getting worse over time. Sometimes the symptoms seem gone, and then they come back 1 hour later like I got hit by a super virus.

@integral Thanks for sharing. I don't have MCS nor any gut health issues. - Btw. there are many, many different illnesses that can induce fatigue. Brain cancer, burn-out, depression can induce heavy, even unbearable fatigue. But they all have a spectrum of different side symptoms and differential tests to exclude them from a doctors perspective. Which they did in my case. My inflammation markers are all low. No deficiencies in vitamins or trace minerals. No cancer cells. Healthy heart, healthy gut, healthy blood, healthy lungs, healthy skin and healthy psyche. I have a air filtration system installed that never measures over PM2,5 > 3. So excellent air quality. I stay housebound basically always. I always ate clean. I'm doing a plant based heavy metal detox at the moment as well. I did have a lot of surgeries, medication treatments and psychological stress in the past though. So I'm more keen on investigating in that direction for now. As strong physical trauma is suspected to cause ME/CFS.

You know chronic fatigue syndrome causes me to lay in bed for 70% of the day. Sometimes I'm too fatigued to keep my eyes open. We are not talking about just brain fog here. And many have it way worse than me. Suicide rates are very high in patients. Some suffer for decades till they give up. And you are so sure about "its just poor air"?

I mean if that was true, CFS would be much worse in places with worse air quality. Thats so easy to test. Yet, this syndrome is equally spread out in global population. Everywhere you look. Same in Norway as in India.

First time I hear this. I changed homes and got a solid air filtration system inbuilt. Also, do severe allergies like this just come over night in adults? Some question marks about that. But than again, everybody says CFS is neuro-immunological and caused by constant inflammation. But what exactly nobody seems to know.

Yeah, as someone who was physically very active throughout life I intuitively use all my spare energy to go out and be as active as I can allow myself. Unfortunately though, this does not (as science agrees) initiate some kind of energy upward spiral with actual ME/CFS. Which also limits how much good mood and satisfaction I can have. Makes me depressed to think about not ever doing sport again tbh.

These numbers are very questionable. If no one inside these advanced stages exist how are you going to screen people to know if they exist? Thats like searching for an animal, when nobody knows how it looks. Impossible. What question do you ask someone to determine if he is diamond consciousness? Many more problems with this..

My sister actually does a lot of booking for them, if you ever need a last minute entry for their shows.